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Old 3 Weeks Ago   #11 (permalink)
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I also fully agree that the donation this month should go to MDA. I'm still pretty new here, but it seems like you have gave a lot to the community, aswell as your awesome folding! Its only fair you and MDA recieve something in return to help others. Keep it up
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Old 3 Weeks Ago   #12 (permalink)
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Wonderful post and a fantastic cause.

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Old 3 Weeks Ago   #13 (permalink)
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You're in my prayers and I hope the donation this month will go to MDA.
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Old 3 Weeks Ago   #14 (permalink)
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mega bump i personally donate to MDA, and think that we as a community should too
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Old 3 Weeks Ago   #15 (permalink)
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Val thank you for your post, it's great to hear about all the amazing things MDA does. When you have someone who has experienced them first hand and know how it feels to have an organization like this, it really shows you how great MDA is. I think MDA is a great cause and I also think the donation should go to MDA.
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Old 3 Weeks Ago   #16 (permalink)
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When I get rich I'm going to donate a lot of money into these associations. Overclock.net should start now.
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Old 3 Weeks Ago   #17 (permalink)
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I also would like to see OCN donate to the MDA this month.
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Old 3 Weeks Ago   #18 (permalink)
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I'll also vote OCN for MDA this month.

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Old 3 Weeks Ago   #19 (permalink)
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Quote:
Originally Posted by Valicious View Post
I recently discovered that Overclock.net donates $100/month to a disease-related charity, and I thought I'd suggest one.

A lot of people of Muscular Dystrophy Association , but not as many have a real idea of the true extent of what they do. Not only do they perform extensive research on many nueromuscular disorders, but MDA also provides numerous forms of assistance to individuals including leg braces, wheelchairs, ramps, and even sending kids to their summer camp.

Over the years MDA has helped me in more ways than I can recall. Of course there is the ongoing research that they do (Charcot Marie Tooth, what affects me, is just one of the diseases they research), but they have provided me with leg braces, a new wheelchair ramp when mine got stolen, and even sent me to summer camp for many many years in a row.

When MDA Summer Camp's website says "The best week of the year", they aren't exaggerating one bit. I saw so many kids smiling during the 8+ years I went there, the kind of smiles and sheer joy that you just don't see other places. MDA Camp is a place that, for me at least, physical challenges seem to almost cease to exist and, even if for just one week, that experience is irreplaceable.
Some of my experiences at camp were bittersweet in a way. I mentioned that I would see more happiness on kids' faces during that week than I'd see during the entire rest of the year, though some faces I didn't see the next year or the year after that. I made a friend at camp during one of my first years there, and we looked forward to and enjoyed seeing each other each year. After a couple years, I stopped seeing him at camp. I thought he just didn't make it that year but, when I didn't see him the next year either, I finally asked and found out he had Duchenne's. It's the nature of some types of Muscular Dystrophy to severely limit a person's lifespan, and I'm so grateful that I was able to see him as happy as he was while I knew him.
One of the aspects I particularily like about MDA is that they focus on both the long- and short-term. While doing research for a cure is essential towards eventual progress, many people need for more immediate help. MDA sees those needs, but also the need for medical advancement, and strives to fulfill both.


I typically refrain from mentioning online that that I have CMT or am in a wheelchair, but the prospect of $100/month being donated to a charity that has helped me so much over the years is much more important than any personal reservations that I might have.

I watched a good friend waste away because of this disease. I was deeply saddened when he died. I went to school with him. Back in the day there wasn't the advancement in drugs for the disease there is now!! I hope they find a cure for all diseases including Diabetis and MD. I have a neice and nephew that are diabetics. Thank you for bringing this up and a Big thank you for OCN for their contribution!!!
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Old 3 Weeks Ago   #20 (permalink)
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I remember watching a movie about a boy who had Duchenne Muscular Dystrophy in school. It truly touched my heart. I support this as well.
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