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Muscular Dystrophy Association...a very special place in my heart - Page 6

post #51 of 60
Bump..Lets all donate!
    
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post #52 of 60
Banhammer.
Quo vadis
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Quo vadis
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post #53 of 60
Bump...
    
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post #54 of 60
i <3 Val!!

OCN needs to donate to MDA!!

my roommates mother has MD, we can tell she is sad about it sometimes and she tries to put on a brave face for everyone...i wish there was a way to make it so she doesn't have to put on her brave face a way to just make it all go away a cure or something...anything
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post #55 of 60
OCN is a Charity, or Non profit in my opinion. Lots of great knowledge here. The government should give a tax right off or something to the admins of this site.
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post #56 of 60
Also one of my sisters's twins has muscular dystrophy. He is 10 years old and is confined to a wheel chair. Doctor's say he won't live past 25 years of age, and as he continues to grow his mobility and mental health will continue to decline.

-Poor kid
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post #57 of 60
A big thread - i'll read through later as it's a subject close to me. I've worked with a boy for a number of years with Duchenne's. He's turned 18 now so I sadly won't see much of him anymore.
post #58 of 60
Great cause. Hopefully the cure will be found soon, as I believe they are getting closer.
Edited by Sorian - 3/5/10 at 12:17am
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post #59 of 60
Great cause, this MDA...

I also have a mild form of MD... Although I'm not using a wheelchair I have had physical therapy for years and years, paid by the government (I'm living in the Netherlands). My parents first found out I had MD after the hospital researched me when I was about 8 or so. I had no idea what was going on, what's going to happen, and I had no idea of the long-term effects. I had never talked to anyone else other than parents and doctors about this, and I never knew anyone suffering from MD. As a child it felt like I was suffering alone as it got worse. Although I'm very lucky that MD has not extremely disabled me, I found this extremely annoying/saddening (can't find the right word :S). In fact sometimes it got me very upset too, and depressed. Sometimes nowadays when MD is affecting me, I get angry. I don't know what I'm angry at, but I know that I have to get on with it.
I've never EVER talked to anyone other than my parents about this (except for the doctors). This thread made me confident about expressing what I had been through, and how it felt. I almost needed a wheelchair (which we had to pay for ourselves), but my parents refused. I thank them for this. If I have, I think I would have felt extremely bad. Not even my best friend knows about this. Physical therapy has/and still is helping me feel confident with my abilities! Thank you guys

As a Dutch citizen I never heard of MDA, but this charity looks like an extremely good cause, supporting MD patients from an extreme depression, which is in my opinion the worst bit of MD. I wish Val, Speed, Hippyguy+family and any other MD patient the best of luck, and please stay strong. <3 Overclock.net
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post #60 of 60
Definitely a good reason to donate to MDA.
Thanks to all of you guys for posting your stories!
Sometimes we get sad for stupid things in our lifes but we must never forget that there are people who REALLY feel bad, and who are much more worried about their health than a failed overclock.
Don't give up hope guys, stick with your passions and hobbies, they will give you great satisfaction and happiness!
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