Great cause, this MDA...
I also have a mild form of MD... Although I'm not using a wheelchair I have had physical therapy for years and years, paid by the government (I'm living in the Netherlands). My parents first found out I had MD after the hospital researched me when I was about 8 or so. I had no idea what was going on, what's going to happen, and I had no idea of the long-term effects. I had never talked to anyone else other than parents and doctors about this, and I never knew anyone suffering from MD. As a child it felt like I was suffering alone as it got worse. Although I'm very lucky that MD has not extremely disabled me, I found this extremely annoying/saddening (can't find the right word :S). In fact sometimes it got me very upset too, and depressed. Sometimes nowadays when MD is affecting me, I get angry. I don't know what I'm angry at, but I know that I have to get on with it.
I've never EVER talked to anyone other than my parents about this (except for the doctors). This thread made me confident about expressing what I had been through, and how it felt. I almost needed a wheelchair (which we had to pay for ourselves), but my parents refused. I thank them for this. If I have, I think I would have felt extremely bad. Not even my best friend knows about this. Physical therapy has/and still is helping me feel confident with my abilities! Thank you guys
As a Dutch citizen I never heard of MDA, but this charity looks like an extremely good cause, supporting MD patients from an extreme depression, which is in my opinion the worst bit of MD. I wish Val, Speed, Hippyguy+family and any other MD patient the best of luck, and please stay strong. <3 Overclock.net